"What is important to you?"

"What do you want to happen?"

"What do you not want to happen?"

"Who would speak for you?"

Advance Care Planning Resources -
including GSF Five Steps ,Thinking Ahead and other international weblinks , videos and resources .

1. GSF Five Steps to ACP video - used in the UK

We developed a simple 3-minute animated video ‘5 Steps to ACP’, to help enable greater awareness amongst the public before further discussions with health or social care teams.

In addition for GSF programmes we provide the 5 Steps Flyers, poster, and brochure to support mainstreaming this throughout your organisation.

See 5 Steps to ACP video below

or see on You Tube freely available GSF ACP 5 Steps from You Tube here or

https://www.youtube.com/watch?v=i2k6U6inIjQ

GSF 5 Steps to ACP video- used in Africa

In addition the GSF-I 5 steps to ACP resource pack includes:-

the 5 steps video
a poster illustrating the steps in summary
a 5 steps flyer explaining how to use it
a patient brochure for people to complete their answers after each section
as well as a WM3-What Matters Most to Me plan guide to clarifying what's most important to people
powerpoints training slides
workshop or teaching in ACP
and other useful videos

2. The GSF 'Thinking Ahead

ACP tool'

The GSF ACP Thinking Ahead Tool has been used for over 15 years and is a brief succinct ‘statement of wishes’ that can be used as a first step by anyone in any setting.

It includes questions such as:

'At this time in your life, what is important to you?

What elements of care are important to you and what WOULD you like to happen in future?

What would you NOT want to happen? Is there anything that you worry about or fear happening?

Who would speak for you if you can no longer speak for yourself - your nominated proxy spokesperson or Lasting Power of Attorney?

In addition, it asks;

Do you have a legal refusal of treatment or ADRT?

If your condition deteriorates where would you like to be cared for (different options or choices)?

Do you have any special requests, preferences, or other comments? (including organ donation)
Are there any comments or additions from other people you are close to? (Please name)

NB: See also any separate DNACPR/AND or ADRT documents

Download GSF thinking Ahead ACP Tool Here

3. Other useful resources developed in the UK and internationally

"I didn't want that."
Dying Matters UK Film

" Lets talk about Death and Dying "
Age UK

UK- 'What Matters to Me'

RCGP NHS EOLC partners developed 'What matters' conversations, to support more personalised care.

'Be Open, Be Ready, Be Heard'
Advance Care Planning Australia

'When Love is not enough'
- ACP Australia

'Ask ,Chat and Plan.' Singapore
-Introduction to ACP

'SAY' -ACP Canada
animated video to the song by Tara Shannon

Contact us for further information on workshops, teaching, videos, masterclasses and experience of use of ACP in practice.

Further Websites and Varied Resources including games

Australia- https://www.advancecareplanning.org.au/ here

Canada - https://www.advancecareplanning.ca/ here

Singapore https://www.aic.sg/care-services/advance-care-planning here

New Zealand https://www.hqsc.govt.nz/our-programmes/advance-care-planning/information-for-clinicians/ see here

Taiwan
USA Respecting Choices - the well regarded US ACP Programme https://respectingchoices.org/ see here

Prepare for your Care - free US resources and teaching on ACP for public use https://prepareforyourcare.org/welcome see here

ACP-i See the International Society for Advance Care Planning International, with regular bi-annual conferences.https://www.acp-i.org/see here ..
The international society is dedicated to advance care planning , holding regular conferences and sharing information across all contexts and countries, to promote international uptake of advance care planning .

ACP-i 2021 Virtual Conference Aug 23-25th Shared resources from across the world

about innovations in moving ACP upstream:

Jess Simon -Canada

ART

Art project: @nobarriershere gemma.allen@marystevenshospice.co.uk

Graphic novel: https://www.lienfoundation.org/project/all-death-matters

“Say” song: https://www.youtube.com/watch?v=I4C_drUPvr0

with animation:https://www.youtube.com/watch?v=V8W9KmOyc7M

GAMES

Card games

http://www.conversationsforlife.co.uk./

http://caccc-usa.net/en/activities/heart2heart.html

Gowish.org

Hello Game at https://commonpractice.com/

Life Unlocking Card Game – Tharin Phenwan:

https://he02.tci-thaijo.org/index.php/tmj/article/view/196650

Metanalysis of card games: https://journals.sagepub.com/doi/abs/10.1177/02692163211005343

ACP origami - goodlifedeathgrief.org.uk/content/acp-origami-game/

On-line games:

sites.dartmouth.edu/hopewell-hospitalist

https://www.acpemodules.ca/vitalogue/#/prologue

Virtual reality:

https://www.youtube.com/watch?v=vnGygBbExL8

https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-020-00634-w

Podcast: https://www.waitingroomrevolution.com/

Mural: https://www.lifemattersmedia.org/2018/04/lmm-celebrates-national-health-care-decisions-week/

Fortune cookies: https://www.lifeanddeathmatters.ca/care-planning-cookies/

Thanks to Jessica Simon for collating these invaluable examples

UK- The ReSPECT document (Recommended Summary Plan for Emergency Care and Treatment ) is widely used in the UK’s NHS, to help resuscitation discussions and ensure peoples’ wishes are known and understood. Many find it greatly enhances ACP discussions within general practice and for out of hours providers and is well used across wider local areas , improving coordination and communication to all sectors .

See other international resources and references in the OUP Book 'ACP for End of Life care’

Editors Thomas K , Lobo B and Deterring K Oxford University Press 2017- with useful guidance on ACP by leading experts , and 6 well referenced chapters describing work in Canada, USA, Australia , New Zealand , Germany, Asia, and other countries .

30% discount available on ACP Book

If you would like to order the OUP book on 'Advance Care Planning in End of Life Care' , you can claim your 30% discount from this website by entering the discount code AMPROMD9 at the Oxford University Press store see here

Further References and Weblinks